Followup from yesterday

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So, the update from yesterday is that I am now on anticoagulants again, and I am not terribly happy about it. On the plus side I’m on Xarelto which takes way less management than Warfarin, but on the minus side I am told that I likely need to be on them for a long time (at least a year, possibly forever) due to my prior clot history, and so far it’s been giving me a headache and I’m also constantly worried about, you know, bleeding out and dying.

I’m also still in considerable pain, both in my leg but also in my everything else, because this fibro flare just will not end. And I’m under a lot of stress right now, and I’m frustrated at a lot of things.

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Surprise frustrations

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So, I am using way more soap than usual when washing my hands, which has been drying out the skin a lot. To try to counteract that I’ve been using lotion a lot more. But it turns out that this leads to more tactile stimulation on my fingers (basically I constantly feel like I’ve just been soaking in the bathtub for an hour) which in turn leads to a sensory overload/pain flare, and it doesn’t even help with the dry skin anyway, and the dry skin also leads to its own level of sensory issues too. And Fiona’s insistence on sitting on my lap while I work isn’t helping at all. Just before lunch I had a bit of a meltdown because of it.

I guess I need to figure out a better way to periodically clean my hands without leading to other issues.

I could also really use a haircut, because my wild scraggly hair getting in my face is making this worse. Of course all the hair stylists are (rightfully) closed right now. I suppose I could break out my Flowbee but that feels like it’s taking the “mental stress due to isolation” look a bit too far. (Plus I don’t want my hair to be that short right now. I need every femininity cue I can get these days.) Maybe it’s time to finally learn how to use hair clips, but I suspect feeling them bouncing against my face would make me flare too.

Why is my brain like this? Ugh.

Caffeine acclimation

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I’ve mentioned before how I used to self-medicate my undiagnosed ADHD with a trickle of caffeine until I started getting anxiety problems from it. I’ve also mentioned how post-diagnosis I’ve had trouble finding a medication which has worked for me, and I’ve tried slowly reacclimating myself to caffeine during periods between medications.

At my new job we have a pretty decent automatic espresso-drink maker, and out of curiosity I’ve tried slowly consuming one coffee drink over the course of each morning, and so far that’s actually working pretty well for me. Inasmuch as it’s not giving me a panic attack. It hasn’t really helped me with my focus, but maybe this is a sign I can try having more and maybe it won’t make me feel like I’m going to die!

I’m not about to start slamming the energy drinks or anything, but still, I’m glad that I’ve at least been able to get back a thing that’s been missing for the past decade.

Balance

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So, in anticipation of my new job starting next week I’m trying to figure out what the right balance of medications should be for my various neurological issues, and I’m not sure where the balance point should be. I’m mostly thinking out loud here, but I am going to try to walk through it and maybe folks with more experience can comment, or something.

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Adderall pluses and minuses

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So, on the plus side, Adderall XR has been helping me quite a lot with my focus and executive functioning.

On the minus side, I’m having several of the unpleasant side effects: greatly increased blood pressure, numb toes, migraines/nausea (starting yesterday or so), and constipation.

I was really hoping I finally found something that works for me. Maybe I should stop taking it for a couple days and see how I feel. Because right now I just feel bad.

Why I’m open about my mental health (and other things)

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Back in 2015, I was a complete mess, and I did everything I could to hide it. I was still having panic attacks regularly, and they would be brought on by the slightest provocation. But I felt, working in tech, that I had to be quiet about it, and just let things pass and things would get better if I ignored them.

One day a coworker did a thing that triggered a pretty big panic attack. It wasn’t anything malicious on his part, just a cavalier, morbid joke in gestural form that happened to tread upon one of my biggest triggers.

I felt awful, and I wanted to keep from feeling that way again.

So I messaged him on our work chat, and told him that the gesture he made happens to be a huge trigger for me and I was having a pretty major panic attack as a result. And his response was incredibly helpful: he didn’t realize, he understood, and he wouldn’t do it again. And he stuck to that.

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First day on Adderall XR

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So after Concerta turned out to be not a great fit for me I stopped taking it, and decided to wait until my next psychiatrist appointment to try something new.

That appointment was on Wednesday, and the psychiatrist decided that Adderall XR (10mg/day) would be the next logical thing to try. The prescription arrived yesterday (Kaiser’s mail-order pharmacy works fast!) and so I took my first dose this morning.

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Bleh, Concerta

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So I was taking 18mg of Concerta for about a month and found that I tolerated it well, although it wasn’t helping my focus any (and if anything it made me drowsy). So I asked to go up to the next dosage.

So, yesterday I took 27mg for the first time (at 8:30 AM as usual), and it didn’t help me with my focus, but it sure as hell made me feel irritable all day, and my heart rate just progressively went higher and higher throughout the day. At 9 PM it suddenly went up to 130BPM while I was sitting down, and I could feel it pounding too. I finally fell asleep at around 2 AM, and my bed said my heart rate pretty quickly went back down to normal.

Today I opted not to take it at all and I emailed my psychiatrist saying I was going to discontinue it, and I’ll just try self-medicating with caffeine until my next psych appointment in a few weeks, unless she has a specific recommendation for a different thing to try.

Sure would be nice if brains came with user manuals.