Followup from yesterday

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So, the update from yesterday is that I am now on anticoagulants again, and I am not terribly happy about it. On the plus side I’m on Xarelto which takes way less management than Warfarin, but on the minus side I am told that I likely need to be on them for a long time (at least a year, possibly forever) due to my prior clot history, and so far it’s been giving me a headache and I’m also constantly worried about, you know, bleeding out and dying.

I’m also still in considerable pain, both in my leg but also in my everything else, because this fibro flare just will not end. And I’m under a lot of stress right now, and I’m frustrated at a lot of things.

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Diagnostic process

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Today was a travel day to Portland, for Retro Game Expo. So of course just as the train was ready to take off was when my HMO decided to call me to do the ADHD diagnostic intake. I asked if I could just call back later when I wasn’t likely to lose coverage in 3 minutes, and eventually I got the phone number to call.

So, when I got to Portland I called the number, where they immediately put me on hold for 30 minutes. After which they asked me what I was calling about, and when I said I was calling about getting my ADHD screening, they put me on hold for another 15 minutes. Not a great start.

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Sleep diagnosis

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So, after many years of being aware of a problem with my sleep, I finally saw a sleep specialist. It was good to learn that whatever is going on can be figured out and treated.

What’s really frustrating is what led to me taking this long, and how much I’ve been shamed for having this disorder and how I’m yet still being shamed for having not taken care of it sooner.

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