fluffy rambles (ketamine)

Two weeks since my last ketamine infusion and my anxiety is… present, again, and my chronic pain never went away at all but now I’m feeling a lot more aware of it.

I went back and tried Adderall again and it didn’t mess me up, although it also didn’t help me like it did the last time I tried it. But neither Adderall nor caffeine are messing with my blood pressure or increasing my anxiety, so I’ve reopened the conversation with my doctor regarding other meds for ADHD. In particular, I asked about Dexedrine and Desoxyn. Both of them seem promising at the dosages I’m looking at, although my insurance won’t cover Desoxyn (which is unsurprising, there was a TV series about it) so we’re trying Dexedrine first.

Regarding chronic pain, my doctor went over my chart and he noticed that we never really did anything about my high triglycerides, and then he had a thought: what if my high triglycerides are contributing to my fibro symptoms? Doing some cursory literature search found that it’s plausible, at least, so I’m also going to start on Fenofibrate to lower my triglycerides and hopefully get my body in some sort of balance there. He’s also ordered some more labwork to see if I have any gaping vitamin deficiencies.

Have I mentioned how much I cherish this doctor? Of all the doctors I’ve seen, this is the only one where I feel like he actually listens to me, doesn’t talk down to me, understands that I know my body and have done my reserach, and is willing to try things to attempt to treat these complex, deep-seated issues that have caused me problems for the past 25-odd years. It’s a lot easier to be patient as a patient when the healthcare provider treats me with respect like this.

He’s definitely a rare breed.

On the plus side, my focus is way higher, and my anxiety is the lowest it’s been in a decade.

On the minus side, my chronic pain still sucks a lot, and this is still making it very hard for me to do my job.

It’s still been a huge net benefit for me though. And supposedly it takes a little while for ketamine treatments to have an effect on chronic pain. I’ll get there eventually.

Oh yeah, another thing I keep forgetting to mention is that when I feel the ketamine really kick in, it feels like the death part of a death poop from hell. Like, everything is just… ending, and I feel it first in my hands and feet and then it’s a wave that just washes over me.

It also reminds me a lot of a time back in 2005 when I got severely dehydrated and passed out on the sidewalk and got a mild concussion, like I felt like I was dead and that’s okay, everything was calm and peaceful and quiet.

The transition from waking/conscious to ego-death is a bit jarring but once you get there it’s quite lovely. The return to reality can be pretty rough though.

Had my second infusion today. Higher dose, but it was a lot more cozy. Felt like everything is temporary and that I was a tiny speck in an infinite universe, and the universe is okay and I’m glad to be in it.

While things were starting out I realized I’d forgotten to put my phone into do not disturb mode and I was able to direct the meat puppet to ask the nurse to set it, and that worked well. The meat puppet was also able to take the shoes off when they were feeling uncomfortable.

Playlist was Ambienteer - Arrival followed by some Bonobo which started up just as the trip was ending.

This definitely gives me a different relationship with my body.

Anyway the euphoria has worn off and my pain is back. Oh well.

I had my first (of six) ketamine infusions yesterday. It was at a lower dose, mostly to see how I respond to it.

The actual experience was very interesting. Because of the combination of sensory deprivation and the ketamine itself, my sensory experience was limited to what I could directly feel around me, which mostly meant feeling the inside of my mouth with my tongue, and to a much lesser extent feeling the chair I was pressed into. So I sort of felt like my “universe” was the inside of my body, but also a void of nothingness.

I felt like my body was dissolving away and was everything and nothing at the same time, and that my self in the “real world” had ceased to be and that was also okay.

The music I chose had a very strange effect. Many of the sounds were very vocal-adjacent and I felt like they were literally speaking to me, with words I couldn’t understand. For my next session I’m going to use something more abstract and ambient, probably Ambienteer’s work.

During the experience I felt like the universe was infinite and infinitesimal at the same time, like everything is nothing and vice-versa. I kept bringing back my litany to stay grounded and intentional: “I am here to reduce pain, reduce agony, and increase comfort.”

Much of it reminded me of one of my early experiences with cannabis.

At the time I felt like I experienced something extremely profound, and that it would give me plenty to think about. But my cynicism has set in and I’m not feeling like it was life-altering, just that it’s the random nerve firings that happen when a big chunk of the brain is shut off. Ketamine treatments are supposed to work by “helping to create new neural pathways” and I’m still optimistic that repeated treatments and increased dosages will maybe have a beneficial effect.

When I woke up today I had the lowest level of pain I’d had in decades. But as soon as I started working, the flare came right back.

But the lowest level of pain in decades is nothing to sneeze at, and maybe it’s a preview of things to come.

I just hope it’ll all be worth it. This is taking both a lot of time and money, and so far feels like it’s just an excuse to trip balls while calling it “medicine.”

But if this doesn’t work I have no idea what the fuck I’m gonna do.