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November 25, 2011

Labyrinthitis ()

by fluffy at 12:08 AM

So, when all is said and done, a fairly likely diagnosis for what's been going on with me is that I have labyrinthitis (an inflammation of the inner ear, usually due to viral infection). It certainly fits the symptoms, at least — bouts of dizziness which turn into anxiety attacks, occasional tinnitus (more than baseline for me, anyway), and so on. My working theory right now is that the stress of Chris' death made it easy for me to get very dehydrated and therefore rather constipated, which turned into an impacted bowel, and somewhere along the line I also got labyrinthitis (I don't recall exactly when the dizziness or anxiety attacks started but they were I think around the time that I passed out on the 2nd). The stool softeners I've been on for the impacted bowel (and the discontinuation of spironolactone) have helped immensely on the bowel (I'm pooping normally and regularly again, yay!) and the remaining symptoms are all just explained by labyrinthitis and a re-emergence of Raynaud's syndrome, which I've had in the past but haven't had trouble with for a while. And of course, anxiety is a pretty major Raynaud's trigger, which explains how one thing can lead to another (and the progression of an attack really does strongly imply that it's labyrinthitis → anxiety attack → Raynaud's attack).

I don't know the underlying cause of the Raynaud's but I know my mom has it chronically and so there might just be a genetic component, and I just need to learn to relax when I'm having an attack. For a while I had been just meditating (usually while lying down) although I'm not always in a situation where I can do that, and the times that it's gotten out of control have been when I've been in a situation where I just plain couldn't take a break, or just when I was getting better some concerned friend would come over and make sure I was doing okay which would of course just make everything come right back (such as during Chris' funeral, where I'd go lie down in the car and things would be getting fine and then someone would knock on the window, bringing everything right back; of course, Chris's funeral had plenty of NON-dizzy anxiety as well).

Anyway, hopefully if that was the case then I can go back to normal life and be more confident that I'm not going to just die unexpectedly or something, and that in and of itself should help to keep things from getting bad to begin with.

My understanding is that viral labyrinthitis usually takes a few weeks to a few months to clear up on its own, and my bloodwork doesn't support it being bacterial labyrinthitis. My doctor seems to think the labyrinthitis theory is plausible (per a brief email conversation) so I guess I'll just stick with that for now, until something else happens to make me think otherwise.

Comments

#14522 11/25/2011 05:18 am
Well, hope it gets better soon, good luck!
#14523 11/25/2011 05:22 am
I'm glad you've found out what's wrong. I could tell Saturday night at the Emergency Room that you wanted to live, and I'm glad for you that you do. I don't, but I have to stay here for my mother's sake.

I felt somewhat guilty about leaving you alone Sunday, but I thought too that you really needed time alone. Also, selfishly, I really wanted to be sure that I got one of Chris' stuffed animals, and I'm glad I did.

I'd love to spend quality time with you sometime talking about Chris, since you were closest to him these past two years. I know now's not the proper time for you, but I hope we can do that sometime.
#14526 11/25/2011 08:14 am
I don't have positive confirmation that it's what it is - that's just our working theory for now. But it seems sound.

And yeah, I actually appreciated the time alone, although I wasn't sure if you'd feel offended by that. So, good thing that worked out.
#14527 11/25/2011 08:57 am
Labyrinthitis. Inflammation of the labyrinth! I'm imagining all these minotaurs running around a maze made of your swollen ear innards, bumping into walls and making you dizzy. Feel better soon, critterbutt.
#14528 11/25/2011 10:05 am
I first thought of being as confused as Jennifer Connely.
#14529 11/25/2011 08:47 pm
Good to hear you have some answers. I hope you feel better soon. I miss you!
#14530 11/25/2011 09:26 pm
Thanks, Jenn. I've been pretty remiss in my Seattle-visiting duties the last couple years, I know... Maybe SFLive 2012 will be there.
#14531 11/25/2011 10:29 pm
Wow crappy but it's good to find stuff out..

I have pretty bad raynauds. It is supposed to be genetic and pretty common. Basically it just takes management so it doesn't cause discomfort. For me that meant moving out of the snowiest city in america, carrying gloves around, occasionally needing to soak my hands, cranking up the thermostat if I have a heater, and keeping extra blankets on my feet at night. Blue toes makes it impossible to sleep. It's not the coldness, it's the lack of sleep that's worst. I have heard that besides just managing temperature, it helps to be careful about circulation-altering things, like caffeine (yeah right, like I will stop drinking coffee..)
#14532 11/25/2011 10:49 pm
Hm, actually, I hadn't thought about that but that could be related to why the worst attack I had in Japan (with my hands going totally numb) was after drinking some oolong.

I've mostly been avoiding caffeine ever since the Levaquin incident, at least, and I haven't gotten back to my old habits yet (and it's been months!) so I think that's not something I need to worry about chronically. It's just something to keep in mind.