- indieweb: fibromyalgia
- indieweb: chronic pain
- indieweb: intersectionality
- indieweb: disability
- indieweb: rant
I’m in the midst of a really bad fibro flareup lately, and am burning through my sick days at work pretty quickly. It’s frustrating and I need a way out, and something else that I can do as sustainable income.
I’m in a bunch of differently-intersectional support circles, and I’ve noticed the following:
Disability circles: Doesn’t understand the impact of my disability on my profession (because they don’t understand what my profession entails)
Technology circles: Doesn’t understand the impact of my disability on my profession (because they don’t understand what my disability entails)
The thin segment of disability+technology together: Doesn’t have any answers either, just sympathy and relatable experiences with not knowing what the hell to do
I keep asking in technology circles to see if anyone knows other jobs that would use my brain without needing to use my body and I keep on having to grow the list longer and longer with preemptions. No, I can’t go into management; I’m not good at coordinating other peoples' moving parts and it’s not what satisfies me as an engineer, and the brain fog from the pain makes this not a thing I’m likely to be able to get good at. No, I can’t go into teaching or training; that has even more requirements and rigidity in terms of my scheduling and I cannot do anything that requires that I be available at precise times on specific days.
I ask in disability circles, and there’s another, different list; no, I can’t use voice recognition software to program (not while there’s shared open-plan workspaces or I’m working in languages which aren’t suited to it – and I usually don’t have a choice of language). I still can’t go into management; it’s a completely different set of skills and not a natural progression. I already have a good ergonomic setup, both at home and at work. And employers don’t look too kindly on me smoking weed all day.
And in the intersectional circle, the only response I ever get is: “I have no idea, let me know if you figure something out.”Read more…