busybee fluffy rambles

I’m in the midst of a really bad fibro flareup lately, and am burning through my sick days at work pretty quickly. It’s frustrating and I need a way out, and something else that I can do as sustainable income.

I’m in a bunch of differently-intersectional support circles, and I’ve noticed the following:

Disability circles: Doesn’t understand the impact of my disability on my profession (because they don’t understand what my profession entails)

Technology circles: Doesn’t understand the impact of my disability on my profession (because they don’t understand what my disability entails)

The thin segment of disability+technology together: Doesn’t have any answers either, just sympathy and relatable experiences with not knowing what the hell to do

I keep asking in technology circles to see if anyone knows other jobs that would use my brain without needing to use my body and I keep on having to grow the list longer and longer with preemptions. No, I can’t go into management; I’m not good at coordinating other peoples' moving parts and it’s not what satisfies me as an engineer, and the brain fog from the pain makes this not a thing I’m likely to be able to get good at. No, I can’t go into teaching or training; that has even more requirements and rigidity in terms of my scheduling and I cannot do anything that requires that I be available at precise times on specific days.

I ask in disability circles, and there’s another, different list; no, I can’t use voice recognition software to program (not while there’s shared open-plan workspaces or I’m working in languages which aren’t suited to it – and I usually don’t have a choice of language). I still can’t go into management; it’s a completely different set of skills and not a natural progression. I already have a good ergonomic setup, both at home and at work. And employers don’t look too kindly on me smoking weed all day.

And in the intersectional circle, the only response I ever get is: “I have no idea, let me know if you figure something out.”

Whenever Apple talks about a new piece of high-end hardware at WWDC, the Internet resonates: That’s so overpriced! Why would anyone pay that much money for a piece of hardware? A Hackintosh would cost way less! Apple is such a ripoff!

The thing is, the reason these hardware announcements are made at the WorldWide Developer Conference is because the conference is for developers. People who are building the software for people to use. And a lot of that software is for highly-specialized, resource-intense purposes.

Yeah, the average consumer doesn’t need to handle thousands of audio tracks and software instruments at once. The average consumer doesn’t need to handle multiple simultaneous streams of uncompressed 8K video. The average consumer doesn’t care about the latest API features in the next version of macOS or iOS. But the average consumer isn’t who’s being talked to in these presentations. There’s a reason the consumer devices get their own “town hall” events with an entirely different tone.