fatigued

I’ve been struggling with my fibromyalgia + chronic fatigue lately. So hard for me to do any of the things I want to do. I can push myself into it for something especially compelling but that ends up wiping me out for days afterward. And I feel like I’m missing so much time, too.

Even driving a mile to the grocery store and navigating things there and doing the very basics is A Lot for me right now. Driving is such a large amount of effort and I feel like I can barely make it there and back safely.

Song Fight! Live is this weekend and I’m having a hard time even seeing myself being able to participate in it at this point, at least to the level I want to.

I’m so fucking tired, and then I have people around me shaming me for not being able to do the things I want to do, as if I don’t want to be doing them, as if I can just magically summon the fucking energy that isn’t there.

Everything is just a lot and there isn’t a whole lot of stuff out there filling me with optimism. Like, all of the information about chronic fatigue syndrome is that there’s no treatment, it’s all about ✨managing your energy✨ but I’m already doing the bare minimum to exist and even that is too fucking much for me.

I still have so many songs and stories and games in me but they’re just fucking locked inside.

I need help.

May is/was ME/CFS awareness month

I only just learned from eladnarra’s blog that May is ME/CFS awareness month, which I guess is fitting given that throughout all of May I’ve been getting painfully aware that I may have been developing it on top of everything else.

Basically, ever since I got COVID last June I’ve been especially prone to fatigue, vertigo, brain fog, shortness of breath, a persistent cough, and a whole bunch of other long COVID signs. The worst of it comes and goes, but this month has been particularly bad, especially on the fatigue front. And ME/CFS is a very common part of long COVID.

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