busybee fluffy rambles

I have always been a night owl. Society in general shuns the night owl; waking up early is to be praised, you’re a go-getter, you’re proactive. Waking up late means you’re lazy, you’re irresponsible. Medicine is finally waking up¹ to the reality that different people have different natural sleep cycles, and this is okay, but their way of describing this is by calling the late-shift folks “delayed sleep phase disorder.”

People who are trans are told they have gender identity disorder.

People whose brains process stimulus differently and have a tendency to hyperfocus on problem-solving are told they have attention deficit disorder.

These aspects are framed as being outliers, deviations from the norm, problems to be fixed.

Disordered.

All these things that are inherent to me are framed as being problems. Things to be ashamed of. Things to cure.

But they are the things that make me who I am, and which give me strength.

This year IndieWeb Summit was canceled¹, and some pretty good conversations took place. As usual my biggest interest was in doing authenticated, secure sharing of private posts, which has been a huge focus in how I’ve been building Publ.

I wasn’t really able to participate in any of the development stuff (as I’m still in quite a lot of pain due to whatever the hell is going on with my chronic pain stuff interacting with whatever the hell has been going on with my shoulder for the past month), but I did join in on the ending of a discussion/dev session about AutoAuth.

Publ survived the load test. Will fluffy survive the ego test? Time will tell.

Anyway. Today I finally had my first appointment with the new rheumatologist. It went really well. I didn’t get any real new information, but at least this rheum is way friendlier and actually treats me like a human, rather than a pile of symptoms. Plus she actually listens to me and is interested in the things I’ve learned about fibromyalgia and so on.

Since my current meds aren’t doing enough for me, she offered two immediate possibilities, either switching the gabapentin with Lyrica (pregabalin), or supplementing it with Cymbalta. Both were things that the previous rheumatologist had suggested but I loathed working with him and never felt like going back¹.

I’ve been making websites in some form or another since 1995. After 25 years of experience I think I’ve accumulated enough knowledge to know a few things. Here’s some things I’d like younger developers to think about, in no particular order.

I was reading the article Advocating for a Compassionate UI from Rally Health, a tech company who runs a benefits portal for my insurance company. I was reading it specifically because I’ve had various accessibility issues with their website¹ and I wanted to see what their thoughts were regarding accessibility.

My site templates support content/trigger warnings. I took inspiration for this from Mastodon, as it’s one of the better features of that platform. It gives people the chance to opt out of reading content that might be objectionable to them, or which they don’t want to accidentally appear on-screen at a workplace or the like. Or for people who do want to read it, it gives them a chance to center themselves and prepare for what might be coming.

I do this because I have a history of trauma. Certain things, when seen without warning, have a tendency to hurt me badly. But being warned about the content allows me to prepare for it, and if I know what I’m getting into I know, from my own personal experience, that I can face it without having a panic attack.