Hello humankindness

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I’m still recombobulating my brain after the last few days of oxygen deprivation and extreme fatigue. Today was especially difficult for me. And a thing that really bothers me about it is that CHI Franciscan/Virginia Mason has posters everywhere proclaiming their philosophy of “humankindness.”

I don’t feel like “humankindness” was on display when they kept on shuffling me around between waiting rooms and when they were dismissive about every issue I was having. Or when they were trying to just blame it all on my asthma and ignore the acute, severe respiratory distress I was in. And I was having difficulty speaking because of the severe pain in my throat and lungs and the constant need to cough which I couldn’t do, and that just made people get frustrated at me for not speaking loudly or clearly.

And when they did finally give me a COVID test, after hours of waiting, and they just unceremoniously shoved it up my nose and got angry at me when I had discomfort from this, and at that point I had an emotional breakdown and just started crying, and there was absolutely no sympathy or comfort shown to me.

I was treated like a burden, not like a patient or a human being.

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Ah, yes, sick again

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A couple weeks ago I traveled to Albuquerque to visit my family, and now I’m sick with some fun respiratory gunk. It may or may not be COVID (again). Hard to tell at this point. So far it’s at least not as bad as when I got it a year ago. But I’d still rather not be having it at all, y'know?

Anyway I think air travel is Bad, Actually.

Annoyingly this got in the way of all of my pride plans; I was meant to perform with the choir at Trans Pride Seattle last night, and today I was going to go to brunch with friends, and even if I didn’t feel like complete ass I also wouldn’t want to spread this crud to anyone else.

Come to think of it, I can’t recall any time in recent history that I traveled by airplane and didn’t end up getting sick shortly after. Like, even pre-COVID, it was pretty much a given that any time I traveled for work or whatever I’d end up with some awful crud.

I guess in more positive health news, there’s some promising research into new fibromyalgia meds, and also some pretty interesting advances in understanding what fibromyalgia even is and what treatments might help with the underlying issues. So that’s hopeful, at least. Solving fibro pain wouldn’t fix all of my problems but it’d at least make it easier for me to do the things I want to be doing.

STANCE was a huge success

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Oh man I am so overjoyed with how our choir shows went! Holy fuck, joining this choir was probably the best decision I’ve made in a long time. Every show we’ve done has been wonderful and the people are so great and I love spending time with everyone. It’s great being surrounded by fellow ADHD transgender/nonbinary weirdos who all have music in common but so many disparate experiences and ideas and just like, oh god so much talent from everyone.

We’re between seasons now and it’ll feel weird not having rehearsals every Wednesday evening for the next couple months, but there’s a lot of talk about doing plenty of social gatherings in the interim and I’m very much looking forward to that.

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“In this new era of AI”

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There’s been a lot of discussion about a puff piece by Marc Andreessen (formerly of Netscape fame, now of being-yet-another-also-ran-tech-billionaire-who-is-into-the-self-aggrandizing-fad-of-the-moment fame) talking about how AI will save the world.

I am not going to link to it (it’s easy enough to find anyway) but I just bothered to read it and oh my god the privilege and blinders are so obvious.

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The new Apple AR goggles

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My impressions on the hardware, for what it’s worth:

  • Really cool tech
  • Kind of a solution in search of a problem
  • I look forward to seeing what people do with it
  • I look forward to it becoming affordable and usable for a lot more than just running fancy versions of iOS apps
  • I will be way more interested if they let you apply filters to the external screen; why show a video feed of your boring human eyes when you can be your fursona or a protogen?

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An undirected ramble about Furality Sylva

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This past weekend was Furality, which was a pretty darn good time in general. I found it pretty enjoyable and I’ll definitely be doing it again. I figure I’ll share some random undirected thoughts about it.

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An open letter to the Washington State Employment Security Department

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Back in June of 2022 I was let go from a job in a way where I was eligible for unemployment benefits. I immediately filed an unemployment claim, but the response that it was “pending adjudication” due to a wrinkle in how I was let go. I was told that I needed to continue to submit claims weekly if I was to receive any benefits.

However, I was unable to submit those claims. The website would not allow me to submit a claim because it was “pending adjudication,” and all contacts to the ESD resulted in a message that I should call a phone number. I called that number, and I’d be put on hold for two hours, told that nobody was available to help me, and that I should use the website for my unemployment claims needs.

One week ago the adjudication finally found in my favor, but at this point my benefit period has almost ended and I will still be unable to receive my unemployment benefits. And I am told that I should have been submitting my claims every week during this whole period — which I was unable to do, for the reasons stated.

How is any of this fair? This is a frustrating bureaucratic nightmare that needs to be completely overhauled. Sometimes it feels like the cruelty is the point, and that this system is not in place to benefit the people who need it.

Thank you for your consideration.

(Also sent to my state representatives Emily Alvarado and Joe Fitzgibbon, and senator Joe Nguyen.)