A timeline of my chronic pain
Here’s some stuff about stuff.
Rambles that are fluffy, by fluffy
Here’s some stuff about stuff.
The last few days I’ve been having yet another awful chronic pain flareup. So it’s been one of those time periods when I kind of wish I didn’t have a body, or at least didn’t have to exist so much.
This time I don’t even know what brought it on, it just kind of came out of the blue, after a whole week of being too fatigued to do anything substantial.
I’m trying to finish up my remaining commitments for strawberry jam although everyone waiting for music from me is understanding and not in a huge rush. There’s one piece I want to get done today because the team is trying to wrap up development today but they also waited until the last minute to give me a specification for what they wanted so I’m not feeling too bad if I can’t get anything done for them, I guess.
My big fibromyalgia flare seems to have finally subsided, so I’m back to working on music, yay.
Right now I’m working on recording “Sunny Again” for Transitions. The Transitions version has ended up being somewhat more complicated than I was expecting, so this will take a while to get finished. But I really like the arrangement that I have, and I hope that I can pull it off.
I’m having a bad pain flareup and as much as I’d like to push through it and do the concert anyway, from experience I know that’ll just make things worse and I’m trying to get better at self-care and showing myself the same understanding I show others.
So, tentatively I’m planning on my next VR concert being on September 29, at 9 PM Pacific time, hosted on my VRChat group. And of course it’ll be streamed over on my Owncast. Here’s a Discord event link.
The great thing about performing virtually is that I don’t have to worry about venue booking. I can make my own rules for this and I don’t have to feel bad about the reality of my health.
💜
So yeah I’m deep in a pain flareup right now. I made sure that all of the critical bugs in bandcrash are, to my knowledge, fixed, but I just am not in a situation where I can really work on stuff right now due to a massive pain flareup.
I was just starting to work on some music for a game jam game and Novembeat but I don’t think that’s really in the cards for me this year.
And of course now that I’m in agony, suddenly a lot of folks want to interview me for engineering roles that I’d normally be very interested in, so, thanks for twisting the knife on that one.
At least choir is going pretty well and gives me stuff to look forward to.
Do people ever read these things? Or do people just like knowing that I’m still alive? Either way here’s a “I’m still alive” post.
I have two major comic series that I’d like to get back to:
So, these two series are very dear to my heart and both of them have been on hiatus for a while. I would like them to not be on hiatus.
So, yesterday I had my 6-month followup with the cardiologist regarding the heart-related stuff and got the usual litany of obnoxious hand-wringing around my labs (evne though they were now very out-of-date) and yet another lecture about lipids and triglycerides, which, yes, this is why I am seeing you. Meh.
Anyway, the upshot of this is that he did order new labs for me (which I have no issue with, of course, just with how he talked about ordering them), and this morning I figured I’d go get them done. And before doing them I figured I’d use my OTC blood glucose meter to get an idea of what to expect with the blood sugar results.
It came back with 296 mg/dL.
That is… high.
Ah yes, lots of frustrating stuff happening all at once, so much so that I’ve wrapped around to not caring about any of it.
For the last few months I’ve been feeling restless to be doing not-much throughout the day, so I’ve been actively looking for a job. No bites have been occurring. So instead I’ve been working hard on new projects, like the VRChat avatar stuff and also redesigning my website (which I’m close to being able to roll out, incidentally).
But then it turns out that doing work makes my chronic pain flare up again, and now I’m in agony again.
So, I guess I need to find something that makes me feel satisfied with my day (and ideally brings in some amount of income) without being something that my body just absolutely rejects. But what could that possibly be? The stuff I’m good at and the stuff I enjoy doing is stuff that physically hurts to do.