busybee fluffy rambles

So I’ve been on nortriptylene for nearly two weeks now, and so far it’s feeling pretty promising. I’m still at the 10mg dose (I’m supposed to increase to 20 in a few days) and while it hasn’t completely solved my fibromyalgia so far (not that I’d expect it to), it’s definitely helped me out a lot.

In particular, while I still feel pain after a full day of work, it just feels like something that’s present and that tells me that it’s time to take a break from things, rather than putting me into extreme severe agony.

Basically I suspect this is what pain normally feels like to people who don’t have this disability!

I still have some level of fatigue in the morning (and much more later in the day) and I’m still needing to manage my spoons – that’s not something that is likely to ever go away – but even this early and at this low of a dose I feel like I’m heading in the right direction.

Are these updates getting annoying? I figure that the point of having a blog is to be able to do bloggy stuff again, and if people only want to subscribe to Bigger Things they can subscribe to the category-specific feeds on my site or whatever. Or they can skip/skim these entries.

Anyway.

I took my first dose Monday night, and I had some incredibly intense dreams, and I was very aware that I was dreaming but kept on switching between like six different parallel threads, and was also very aware of my various apnea events. I was sort of awake and asleep at the same time and wasn’t really sure what was a dream and what was reality.

All day Tuesday I was drowsy and in a fog, and did absolutely nothing with my day except basic things around my home. Fortunately, it was also a day off because of the snowpocalypse.

I was kind of worried that my second day on it would be much the same, but aside from feeling vaguely like I was stoned all morning, I made it to work just fine (although I was in sort of a zombie mode on my way there), and then during the day I actually had a fairly productive day. In particular, I finally looked into modernizing the lab’s website (which was originally running Movable Type, just like this one), and realized that a quick-ish path forward would be to use Publ. However, the lab’s site had a lot more hackiness with templates and layout than my own one did, and I quickly came to the conclusion that the best path forward would be to finally implement better support for pure-HTML entries – so I did.

So far I’m not finding any major reduction in my pain levels (and if anything I’m noticing the pain I do have much more acutely) but I mean I’m only at the starting taper dose.

I’m getting a couple of cavities filled tomorrow. I’m not looking forward to finding out how that interacts with this current mental state.

So, Seattle’s been basically shut down for most of the past, oh, week and change, thanks to the snow. People did overreact to the news of the snow (did they really need to stock up with a month’s worth of bread and milk?) but the various shutdowns do otherwise make sense; Seattle is very hilly and when it snows it gets icy and slippery. And some caution does make sense for having a nonperishable food supply, since power outages are a thing. The really remarkable thing is just how much snow we’ve gotten this year; most years we’ll get none or just a light dusting, or maybe we’ll get one or two snow days when it gets especially bad.

But anyway. Despite the shutdowns, my doctor’s office was still open today (thankfully, although unsurprisingly as they have an urgent care clinic so they make plans to stay open as much as possible). So I was able to do my appointment where I finally got to deal with my various medications for fibromyalgia (as well as finally getting a new prescription of estradiol).

I finally got the results of my sleep study. Well, partial results, anyway. In-home tests can find either obstructive or central apnea, and complex apneas appear as obstructive. So, unsurprisingly, it determined that I have obstructive apnea.

Anyway, the good news about this (and it’s all good news!) is that I’ll be getting a CPAP machine, and modern CPAP machines are small, lightweight, self-adjusting (no need for a separate titration!), and also provide ongoing diagnosis. So after two weeks of sleeping with it, I’ll know if I have complex or simple obstructive apnea, and either way the treatment is a CPAP so I don’t really care to split hairs about what the underlying problem is.

Okay so I like LÖVE for making games, and have used it for quite a few of them at this point.

I like that it gives me a bunch of useful primitives for making games, and then just gets out of my way. And I like that it has a simple build process where it isn’t too difficult to make a cross-platform build and continuous deployment system that also lets me do continuous deployment to itch.io or whatever.

And I also like that Lua is a fairly easy language to learn, with a simple syntax. But there’s a few things about it which are just baffling or annoying to me.

And I’m not talking about the 1-based arrays! (That’s annoying in a couple of situations but for the most part it doesn’t really matter, at least not to the extent that people make a big deal about it.)

So yeah. This explains a lot about my chronic pain issues – and a bunch of other things.

It explains my IBS and anxiety.

It explains my sensory overload.

It explains my chemical sensitivity.

It explains my need to manage my “spoons.”

It explains why drinking alcohol makes me hurt all over.

And it also explains how I can move forward, and I’m actually already on the right track.

Me: My wrists have been chronically sore for over 20 years and it’s basically everything except carpal tunnel syndrome.

Doctor: Maybe it’s arthritis?

Me: No, it doesn’t match the symptoms of arthritis, it’s some sort of chronic inflammation. Maybe there’s a structural issue that makes me extra prone to inflammation.

Doctor: Hmm. Well, let’s get a bunch of tests done, like x-rays and such.

Me: And soft-tissue scans?

Doctor: Sure.

Doctor: [orders a bunch of tests, including x-rays, but no soft-tissue scans]

Me: [does them, wonders what the point was]

Tests: [are for arthritis]

Doctor: You don’t have arthritis. But you do have signs of inflammation!

Me: You don’t say.

When I finally came out as trans at work back in 2015, it took a little bit of time for my coworkers to get up to speed. Most of them were great at simply self-correcting and moving on. There were always a few people who would start to make excuses for how hard it was, though, and go on and on at length about it, citing the pronouns that they used for me when they first met me or whatever. This latter behavior is a bit irritating, but I eventually got some of them to stop.

At my current job, where I started out female-presenting but visibly trans to begin with, I’ve only had one coworker have any trouble with my pronouns, and she’s always been great at self-correcting and moving on, with no further comment. And that is exactly what I want.

Most of my friends have been great about it too. When I was using they/them (as a concession to “how hard it is”), most of my friends were good at either self-correcting or mutually-correcting each other. There would be a few holdouts, but none of them really turned out to be actually friends – they’d all turn out to have some deep-seated transphobic baggage that they refused to address, and I’d have to cut ties with them. Fortunately that was the vast minority. And much more recently when I realized that I definitely prefer she/her, but they/them is still fine, well, I still have the same friends who are still being supportive in the same way.

In particular, one of my oldest friends, who is now also my business partner, has been amazing at self-correcting, in a way that is apparent to others and gets others on board. And he’s even gone through a second phase of that when I did the they/them to she/her switch, which isn’t even that necessary but I so greatly appreciate that he makes the effort.

But there are certain people in my life who claim to want to be on board but keep on making excuses for why they can’t, and why it’s so hard for them, and eventually shift the blame onto me. And they are people that I can’t simply cut ties with.