meh

The reports we received had enough information to evaluate your condition.

You said you were unable to work as of 05/15/2022 because of fibromyalgia, chronic pain, arthritis of hands and knees, vertigo, hypermobility spectrum disorder, depression, panic disorder, anxiety, and ADHD.

The evidence shows you have received treatment and assessment for these conditions.

We do not have sufficient vocational information to determine whether you can perform any of your past relevant work. However, based on the evidence in file, we have determined that you can adjust to other work. Because you can still perform some type of work, you are not considered disabled. Therefore, a period of disability cannot be established.

If your condition gets worse and keeps you from working, please contact any Social Security office about filing another application.

Given how many times I had to file a vocational report (at great length, in longhand, which FUCKING HURTS) I’m guessing they just never fucking received it. And of course, I’d love to work, but nobody wants to hire me for the number of hours I can work doing what I’m able to do, and commuting is also quite difficult for me.

I’m still waiting to hear back from my disability attorney but she hasn’t responded to any of my messages over the past couple weeks. Guess I need to send her a text on Monday.

In the meantime I’ve applied for all of the state-level things I can find, and it turns out that they do not require me to be declared disabled federally to be a possibility. Washington Connection is super helpful.

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Tyler update

I forgot to post about it here but Tyler’s problem turned out to be much simpler: he had fleas. A really bad case of them, which should have been obvious to me, but I am apparently oblivious to the difference between “he is unable to clean himself” and “the crusty junk all over his hindquarters is flea poop.” And the pain was just because he was super overwhelmed by, y'know, having bugs crawling all over him and biting him.

He is now on flea medication, as is Fiona (even though she never got infested, better safe than sorry), and he’s back to his old cuddly self. I also thorogughly combed him and disposed of so many dead fleas, and have done so much laundry.

I think I’m going to try once again to keep Tyler and Fiona indoors all the time from now on. Wish me luck.

2024 → 2025

As is tradition, I am not a fan of resolutions, just aspirations.

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More cat woes

When I adopted Tyler, his tail had a couple of kinks in it, apparent signs of dislocations or other injuries. The vet said that they’re just a normal thing that happens to some cats, and that it’s generally not harmful to them and there isn’t really anything that can be done.

Unfortunately, Tyler how has a third kink in his tail, and this one’s pretty close to his spine, and he’s clearly in pain from it. He’s been unable to clean his hindquarters anymore (which he was never great at to begin with) and whenever I try brushing him or even gently petting him there he’s clearly in a lot of distress. Even just lying in place he’s having a lot of trouble getting comfortable.

So, I’m going to take him to the vet, and I expect that whatever they find it’s going to be pretty expensive to take care of. Sigh.

From what I’m finding online, most likely the vet will want to do some x-rays, and depending on what they find they might either need to set the joints and splint his tail for a while or, unfortunately, they may need to amputate.

But he’s clearly in a lot of pain and I want him not to be!

Some thoughts on comments

You might have noticed that I’ve made a slight change to the comments on this site: the comment threads are only visible to those who are signed in. This is a temporary experiment just to see if it cuts out the spam I’ve been getting and also if it increases the quality of what comments do come in.

I’ve been thinking about how I can go about improving comments in general, in ways which would also satisfy some of my other general long-term plans around Publ.

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Tech upgrades

I got an M4 Pro mini for my office, so that I could put my M1 Studio in my studio. I’ve also changed web browsers. Let’s talk about both of those things, and one other thing!

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The original Publ design doc

I was just going through some old files while preparing some hardware migration stuff (ugh) and I came across a file entitled distributed social network.md, dated December 13, 2014. This was the start of my ideas about what would eventually result in Publ.

Obviously things drifted a lot between 2014 and 2017 when I finally started implementing Publ, and a lot has changed with my goals since then as well.

Don’t use this as a roadmap, is what I’m saying.

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Brilliant Minds and mirror-touch synaesthesia

About a month ago I was turned on to the show Brilliant Minds by means of a Steve Shives video. My curiosity in it was piqued specifically because of his mention of two characters: the main character is faceblind, and one of the supporting cast has mirror-touch synaesthesia.

I have both of those things! And nearly every time I’ve seen them portrayed in the media it’s been infuriatingly awful!

So of course I just had to watch this show to see how it handled them.

There are mild spoilers below.

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Yet another open letter to the Governor of Washington State

Hi, I am once again writing to request a reconsideration of the state-wide Electric Vehicle Transportation Fee, the additional $75 line-item added to electric vehicles' car registrations in the state of Washington.

The purpose of this fee is supposed to be to encourage the adoption of electric vehicles, but it does exactly the opposite. This $75/year fee represents more than I pay for energy on my electric vehicle in any given year, and I, like most EV owners, charge my vehicle at home on equipment I paid hundreds of dollars for.

This is on top of the already ridiculously-high $150/year fee that is meant to offset the missing fuel tax, which already is for more than the total amount of fuel I would have bought in any given year.

I only drive around 1000 miles per year. I am disabled and on a limited income. I bought an older, used electric vehicle somewhat to reduce my already-low transportation costs but mostly to be better to the environment based on how little I drive to begin with, as the environmental impact of the oil changes that I no longer need was pretty significant, especially compared to how little I was driving.

This $225 total in fees means I am paying vastly more than my fair share compared to drivers of internal-combustion vehicles, and am being actively punished for making the right choice in terms of harm reduction on the environment.

I am also already paying more for the infrastructure offsets actually taken by my (again, seldom-driven) electric vehicle in the form of the two “additional vehicle weight” fees, which total $35 (split up into $10 and $25 for some reason).

A much more equitable approach would be to assess a much smaller fee across drivers of all vehicles, regardless of fuel type, which would actually encourage EV adoption, and would also generate more revenue for the state.

I urge you to please re-evaluate these regressive fees and to consider a more equitable means of offsetting infrastructure costs.