Prognosis: good

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Just got back from the doctor. She says I definitely have a virus but it’s probably not COVID-19; I probably have one of the many other emergent respiratory viruses that’s going around, many of which also cause the symptoms I’m feeling. Notably I’m not having any signs of pneumonia, which is what I really need to look out for.

She prescribed me prednisone and inhaled steroids and says I should continue to self-isolate (of course) but otherwise I don’t really have anything to worry about. Of course I should go back if things get worse and keep her in the loop about any changes.

Incidentally, I am quite pleased with One Medical so far. They were super-friendly and compassionate, and they asked my pronouns and are elated to call me “fluffy.” It’s annoying that this kind of healthcare is only really available if you’re able to spend $200/year for concierge care, but I’m glad to be in a position where I can.

I mean, Kaiser was pretty okay! But they still felt bureaucratic and, well, HMO-ish. (And they were still better than any of the major care clinics/hospitals in Seattle, like Swedish or, worse yet, Virginia Mason…)

Anyway. Folks were asking for updates so here’s the update.

Current status

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My shortness of breath has gotten somewhat worse, and my peak flow is around 400 L/min, which is somewhat lower than my average healthy level.

I had a video visit with one of the nurse practitioners at One Medical and while my symptoms aren’t severe enough yet that they think I need urgent attention, they do want me to come in this afternoon for a secondary screening so they can check out my lungs and see what’s going on with my asthma, at least.

Despite the current administration’s advertisements, there’s still no test kits available, and they’re not expected to be for a couple weeks. This h*cking country, am I right? And the CDC still only care about suspected direct exposure or people who have themselves traveled internationally, despite the growing epidemic and the fact that almost none of the confirmed cases (including deaths) fell into those categories.

If this were just an asthma flare due to a cold they’d be putting me on prednisone (which is a standard course of treatment which works well for me), but they’re concerned about the immunosuppressant effect if I do have COVID-19.

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Living in a future ghost town

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Pretty much all of the tech companies (mine included) have moved to a “work from home unless absolutely necessary” policy. We’re all suddenly getting into a remote-worker mindset — which I think is a long-term good thing, but it’s jarring. Looking out my dining room window I still see a typical amount of foot and car traffic for this time of day, but there’s an air of desperation and paranoia. Maybe I’m just projecting though.

My own symptoms have all but cleared up. I do have a persistent ache in my back and shoulders, which I’m not sure if it’s attributable to this mystery illness or is simply my fibromyalgia flaring up as always. My temperature is back to normal. I’m still coughing on occasion but it’s infrequent, and it’s gone from dry to productive. My shortness of breath is… well, still lurking, but doesn’t feel like an impairment at the moment. I’m still glad that I have a pretty strong reserve of albuterol, all the same.

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Health update

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I took a sick day today, because I was feeling very much under the weather, and had a mild fever and a bit of a cough. I rested up a bunch and I’m feeling a lot better now. Still slightly short of breath. So I’m probably going to continue to work from home for the next few days at least (a shame, I really want to try out my new chair which finally arrived today!) and if I hear that COVID-19 test kits are both reliable and available I’ll probably see about getting tested, even if it doesn’t progress any further than this. I’m also going to skip my drawing group this week.

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Cold in a hot zone

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So, COVID-19 has made it to Seattle, and there’s been enough localized outbreaks that people are absolutely flipping out because of it. Store shelves have been cleared of nonperishables, paper products (especially toilet paper!), hand sanitizer, face masks, and bottled water (even though there’s been absolutely no concerns about our water infrastructure whatsoever and this is only causing problems for people who need to, like, fill their CPAPs and humidifiers and whatever).

Hospitals are completely overwhelmed and unprepared, and there’s no test kits to go around. I have people shouting in one ear about how terrible everything is and how we’re all going to die, and people in the other ear saying how everyone who’s overreacting is being silly and there’s no reason for anyone to do anything differently.

Somewhere in the middle, I am concerned about the pandemic, but also about what this will do to this city while everyone’s in a panic.

And meanwhile, I’m coming down with something. I don’t know if it’s my usual winter cold, or something worse; I don’t think I’ve been in a situation where I’d have been exposed to COVID-19 in particular, but for the past few days I’ve had persistent shortness of breath, and today I started feeling nauseous and came close to vomiting; not a typical COVID-19 symptom but not without precedent either.

I contacted my new doctor about it and they gave me the usual CDC guidance and that if I’m feeling ill and haven’t been directly exposed to coronavirus I should come in for an exam, and if I have possibly been exposed they can do a video visit to get a better idea of what’s going on. Meanwhile I had a hot shower and some toast and fried eggs for dinner and I’m feeling somewhat better. Not great, but better.

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Adderall pluses and minuses

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So, on the plus side, Adderall XR has been helping me quite a lot with my focus and executive functioning.

On the minus side, I’m having several of the unpleasant side effects: greatly increased blood pressure, numb toes, migraines/nausea (starting yesterday or so), and constipation.

I was really hoping I finally found something that works for me. Maybe I should stop taking it for a couple days and see how I feel. Because right now I just feel bad.

Current sleep/pain/etc. checkin

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Let’s see, where am I at right now…

  • Sleep: I got a weighted blanket on Meh. I’ve slept with it two nights. First night my sleep was aborted because of a… thing, second night I slept pretty well under it and woke up sore in the morning as if I’d been lifting weights for the last several hours. Interesting.

  • My new CPAP mask has been working pretty well for me. Although somehow I managed to not only take it off but take it apart in my sleep last night. Wat.

  • The… thing: I was feeling a mysterious pain in my left leg and hip starting on… Tuesday, I think? and it was getting worse and worse, and felt a lot like the DVT I had back in November 2017 which threw a clot and turned into a pulmonary embolism which wasn’t exactly a fun experience that I have any interest in repeating anytime soon. So I went to the ER to get it checked out, and it turned up… nothing. So, good news, no DVT. The doctor suggested I just take it easy for the next few days, which I am trying to do, and oddly enough I’m feeling a lot better, go figure. Also I’m glad I’m with Kaiser because the whole thing only cost me $15.

  • But it’s hard for me to take things easy because I want to get my home clean, because my birthday is coming up soon and I am intending to host a completely unrelated pizza party at my home. (Incidentally, if you are in the Seattle area and are interested in pizza and you think I know you well enough to let you into my home, let me know and I’ll maybe extend you an invitation to the party!) Fortunately a friend is coming over tomorrow to help me out with the cleaning stuff (for which I am incredibly grateful!) but I am oh so very tired. So I mean I’m taking things easy at the moment, but I’d rather not.

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The current state of the fluffy

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I guess it’s been a little while since my last post about the unending tire fire that is my mental state. I’ve been yo-yoing a lot, but here’s a summary of where I’m at right now:

CPAP: I’m back on it, trying some different things to make it more useful. The main problem seems to be bad mask fit, so tomorrow I’m going in for a proper mask fitting (rather than the half-assed thing the DME vendor did during the training session). Hopefully that will help.

Nortriptyline: I’m steady at 30mg/day, and have started taking it earlier in the evening, which has helped me with actually being tired when I need to be.

That weird failed drug test: Still no idea what happened with it. As one followup to it I had another diabetes screening (since that’s one possible cause of a false opium positive) but that came back fine (normal A1C and nothing out of the ordinary with my blood sugar), so that’s one less thing to worry about at least.

Day job: Still feeling like this is a bad match for me. Coworker is trying to assure me that I’m doing fine and trying to be helpful at getting me up to speed on the stuff I need to understand, but my brain refuses to play along.

AR startup: Going pretty well, I guess? I’m not doing a lot of active work for it but I’m glad to help out where I can.

Social life: I’m feeling much more withdrawn from my usual activities and am still on hiatus from most of my meetup groups. Ed is no longer hosting karaoke so I’m back to doing my drawing group every week. It’s going just Okay but I mostly use it for hanging out with a handful of folks I like. With a couple of those folks I saw Detective Pikachu the other day, which I enjoyed but I still have thoughts about. The monthly “smol games” group I’m in is still great though, even though I’m not actively working on any games (but I love seeing what other people are doing).

Music: Still plinking away at stuff. Also I really want to be able to attend Song Fight! Live, which is in Madison this year, but planning travel for it is a bit onerous. With music production I keep on waffling between “this stuff I’m making is pretty good, actually” and “ugh this is garbage.” So, same old, same old.

Feeling pretty darn great

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So yeah the last um… two months have seen my fibromyalgia getting worse and worse, and my sleep getting worse and worse, and my pain getting worse and worse, and me just plain feeling like garbage and falling apart and constantly falling asleep throughout the day.

I still haven’t heard back from last week’s in-lab sleep study, but finally I decided enough was enough and two days ago stopped using my CPAP.

Two days ago I thought I might have to cancel all my weekend plans. Today, however, I felt absolutely fantastic, and did those plans and then some. And I still feel fine.

I am pretty sure the CPAP has been doing more harm than good, and I need to make the sleep doctor understand that while one metric (AHI) was going down, it’s only because the more important metric (amount of actual sleep managed) went down moreso.

Like, yeah, I wasn’t suffocating in my sleep, because I wasn’t sleeping.

Anyway. Tomorrow I will probably stream the iPhone battery replacement at, say, 2 PM PDT; if you want to see me possibly destroy the only phone I have which works properly, follow my twitch channel and “ring that bell,” as all the YouTubers say.

And I hope that with this newfound state of feeling pretty okay I’ll be able to start making music and comics (and therefore streaming!) more regularly again.

Treatment progress

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On the nortriptyline front, I’m up to 20mg/day and it’s feeling fine. It hasn’t solved my fibromyalgia forever (and after a day of typing and whatnot I’m still in pain, and my pressure points are still indicative of fibro) but it’s helping me a lot all the same. An unsurprising-but-nice thing is that it’s also vastly reduced my anxiety, which isn’t too surprising since that’s one of the on-label uses of this medication that I’m technically taking off-label. Does that count as a side-effect?

On the CPAP front, I’ve switched back to the nasal mask and it’s actually working pretty okay for me. I think the machine has finally learned to reduce its pressure because I’m a lot more comfortable throughout the night, although I still end up waking up at around 4 AM and taking it off so I can scratch my nose. Still, I’m generally feeling a lot more refreshed in the morning. I just need to get in the habit of putting it back on after I wake up and take care of the itching.

Also my cats have gotten used to it, which is nice.