busybee

A real smorgasbord of things to ramble about/catch up on.

Over the last week I’ve been getting a solar generation system installed on my roof. Today it finally became operational.

The system itself was designed and installed by Sun Path Electric, which were amazing to work with. I’d gone through the bid process with a few companies (including a fairly shady one that was advertising on YouTube) and Sun Path definitely gave me the best configuration and price, as well as the highest confidence in their ability to execute correctly.

I am in chronic pain. I have always been in some amount of pain. It’s become increasingly unbearable over the past 25 years. It’s not just all in my head.

I have always been overweight. I have always had high cholesterol. I have always had high triglycerides. No amount of chiding me about “diet” and “exercise” will change that. I am not lying to you about my dietary habits. I am not constantly shoveling down huge quantities of fast food. I exercise when I can, as much as I can. I mostly cook for myself, and I cook healthy foods.

The thing I eat the most of is salad!

There is probably a link between high triglycerides and fibromyalgia. There is a lot of evidence supporting that. But correlation is not causation. Given my lifestyle and dietary habits it seems unlikely that it’s the triglycerides causing the fibromyalgia. It’s probably the other way around, or there’s a common cause to both that has not yet been identified.

Treating me like a FUCKING CHILD WHO DOESN’T KNOW MY OWN BODY isn’t how to get me to feel better. Instead of just assuming that I don’t understand nutrition and don’t understand exercise and that I’m eating too much and drinking and smoking all the time, maybe. FUCKING. just FUCKING. LISTEN to me.

I promise that I am not lying about these things. I want to get better. It’s why I’m fucking coming to you.

While we’re at it, yes, I have sleep apnea of some sort, but three sleep studies have had conflicting results and either way, CPAP wasn’t helpful, and my most recent sleep study did not support the ongoing use of it. It wasn’t my choice to stop using it, it was AN ACTUAL FUCKING SLEEP DOCTOR who told me to stop using it and who stopped authorizing the refresh of the equipment. Which, you know. Requires a prescription. From a doctor. And I monitor my oxygen and heart rate most nights, and the metrics show that any breathing pauses are brief. And no I don’t want to be having them either! But chiding me for not using a CPAP that I’m not authorized to have isn’t. FUCKING. Helpful.

(And even if I did have obstructive apnea, most signs point to obstructive apnea causing weight gain, not the other way around.)

I am well aware that my lab results are troublesome. I am doing what I can. Don’t infantilize me and assume that I don’t understand that High Numbers Are Bad.

And yes I’ve tried statins and they just make me unable to move at all because of excruciating pain, and the same thing happened with fenofibrate. I’d be taking them if I could! I actually do want to get better! I am not making excuses! I am not being stubborn! It’s not like I have some sort of secret hatred of being on medication. Some people have a weird sense of pride about not taking meds, about seeing them as a failure. I don’t.

Today I had a followup appointment with the cardiologist following the incident. He said that most of the lab results from the ER were good, but there’s a slight concern from my EKG, and of course he’s concerned about my high cholesterol and triglycerides (as well as borderline A1C), as well as with my family history.

For diagnostics, he’s having me do a treadmill stress test in a couple weeks, and also get an echocardiogram to measure the thing the EKG indicated as a potential issue.

For cholesterol and triglycerides, I told him about my history with statins and fenofibrate causing massive systemic pain problems and muscle failure symptoms, so he’s putting me on Repatha, which is a rather interesting treatment option that involves a biweekly injection of monoclonal antibodies, and which shouldn’t have any bad health effects.

When I first started on my home espresso journey, I had an ancient hand-me-down Krups¹, but it made awful coffee². I donated that to a charity shop, as I thought my Aeropress³ and its “espresso-style coffee” was sufficient. Then I added a Fellow Prismo to the mix to add a bit more pressure (and cleanliness), but this still wasn’t espresso. Then my eye got caught by the Flair Classic, which was much better at making espresso but also much fussier. So I started investigating a bunch of home espresso machines, and I decided I wanted the Breville Bambino Plus… but it was pretty much impossible to buy.

After trying to buy it from a few different places, and trying to order a few other machines, I eventually settled on the Gaggia Classic Pro, which I used fairly happily for about a year and a half.

But there were still a bunch of things I didn’t like about it, such as the lack of preinfusion, a difficult-to-use steam wand, and a water tank design that made it way too easy for fruit flies to reenact Hotel California⁴. So, last November, when the Bambino went on a pretty deep (20%) discount for Black Friday (and when I was already spending large amounts of money getting my kitchen remodeled anyway), I decided to take the plunge and get the machine I’d wanted in the first place.