So tired fluffy rambles
I’ve changed my Lyrica dosing schedule to take it all in the evening, which has helped a little with my fatigue but I’m still just so very tired throughout the day and can barely get anything done.
I’m also still in a lot of pain and can barely get anything done because of that, too. I feel like what few responsibilities I have these days are falling by the wayside and I feel awful about it.
In particular, I have a few pieces of music I need to get done soon and I want to get done but I just can’t work up the energy to do so. Plus I still want to finish the basement reorganization project and that just feels Bad right now.
This weekend was also pretty draining, from Song Fight! Live (which went well but which I have some Thoughts about which aren’t suitable for sharing in public), and then yesterday my ADHD support group had a somewhat-impromptu meeting at Cal Anderson which was a bit of a nightmare to get to and not worth the energy expenditure given how few people actually came.
I’m just so tired of being tired.
fatigued fluffy rambles
I’ve been struggling with my fibromyalgia + chronic fatigue lately. So hard for me to do any of the things I want to do. I can push myself into it for something especially compelling but that ends up wiping me out for days afterward. And I feel like I’m missing so much time, too.
Even driving a mile to the grocery store and navigating things there and doing the very basics is A Lot for me right now. Driving is such a large amount of effort and I feel like I can barely make it there and back safely.
Song Fight! Live is this weekend and I’m having a hard time even seeing myself being able to participate in it at this point, at least to the level I want to.
I’m so fucking tired, and then I have people around me shaming me for not being able to do the things I want to do, as if I don’t want to be doing them, as if I can just magically summon the fucking energy that isn’t there.
Everything is just a lot and there isn’t a whole lot of stuff out there filling me with optimism. Like, all of the information about chronic fatigue syndrome is that there’s no treatment, it’s all about ✨managing your energy✨ but I’m already doing the bare minimum to exist and even that is too fucking much for me.
I still have so many songs and stories and games in me but they’re just fucking locked inside.
I need help.
May is/was ME/CFS awareness month fluffy rambles
I only just learned from eladnarra’s blog that May is ME/CFS awareness month, which I guess is fitting given that throughout all of May I’ve been getting painfully aware that I may have been developing it on top of everything else.
Basically, ever since I got COVID last June I’ve been especially prone to fatigue, vertigo, brain fog, shortness of breath, a persistent cough, and a whole bunch of other long COVID signs. The worst of it comes and goes, but this month has been particularly bad, especially on the fatigue front. And ME/CFS is a very common part of long COVID.